Young Woman’s Struggle with Functional Neurological Disorder

A young woman, Lillie Thorne, aged 22, has been unable to walk after experiencing sudden paralysis on one side of her face. Doctors diagnosed her with Functional Neurological Disorder (FND) after extensive tests. This condition has left her and her family searching for answers and treatment options.

Initial Symptoms and Diagnosis

Lillie awoke one morning to discover that the left side of her face was drooping and immobile. Just days later, she also lost the ability to speak and walk. Despite initial treatment for Bell’s palsy, a condition that often resolves within months, her symptoms worsened. She visited the hospital and was prescribed medication but saw no improvement. Eventually, the medical team concluded she was suffering from FND.

Understanding FND

FND is characterized by problems in how the brain sends signals to the body. It affects tens of thousands in the UK. Despite this prevalence, many people remain unaware of the disorder, underscoring a need for greater awareness. Treatment for FND focuses on retraining the brain and nervous system with a team of specialists.

Family’s Response

Her family has started a crowdfunding campaign to afford private treatments. Lillie doesn’t qualify for specialized NHS services, so private options in Leeds are being considered. The funds will cover consultations, rehabilitation, and travel costs. Currently, Lillie is living with her grandparents, receiving support from her family and boyfriend Marc.

Moving Forward

Lillie has regained her speech but still struggles with slurred words and stuttering. She continues to have seizures and cannot yet walk. She is undergoing physiotherapy to help regain her mobility. The family remains hopeful that through proper treatment, Lillie can attain greater independence and improve her quality of life. They are committed to raising awareness about FND to help others who might be affected.